(Minneapolis, MN) — November 9th, 2022 — This week, the Xeroderma Pigmentosum (XP) Family Support Group will be hosting families from all over the world at their XP Medical Conference in Minnesota.
Xeroderma Pigmentosum is a rare inherited disease affecting both males and females. It causes a person to be extremely sensitive to the damaging effects of ultraviolet radiation. Undiagnosed and untreated, Xeroderma Pigmentosum can lead to the early onset of skin cancer and blindness. In addition, approximately 20% of people with Xeroderma Pigmentosum also develop progressive neurological disease.
During the event, there will be daily talks given by medical doctors and expert scientists at the University of Minnesota, opportunities for families to meet with physicians, and connect with one another. Games, activities, and field trips will fill the days for the children, all in UV-safe environments.
The Xeroderma Pigmentosum (XP) Family Support Group exists to improve the quality of life for people with XP and other diagnosed UV light conditions. The Xeroderma Pigmentosum Family Support Group (XPFSG) strives to create awareness and educate the public about XP, as well as to raise funds to promote research, create collaborations with international XP partner organizations, and provide family grants for UV protective equipment and holds a bi-annual XP Medical Conference and kids camp. To learn more about the XP Family Support group and to show support through donations, please visit XPFamilySupport.org
